creativity

Living in gratitude on my 5-year cancer journey

Me outside the Perlmutter Cancer Center in NYC on October 29th after seeing my surgeon on the 5-year anniversary of my discharge from surgery

Last week I celebrated 5 years since the bilateral mastectomy that saved my life and removed any sign of cancer from my body. My friend, Wayne, describes journeys like this as a log flume. When we begin, we’re at the top of a terrifying drop. We’re scared, nervous, unsure, hopeful, confused, anxious. All the emotions of the human condition are raw and tumbled in our minds and hearts. We’re trying to keep our head up and our eyes ahead. we don’t want to take that plunge into the unknown. But we have to. We can’t turn around. The only way out is through.

And so, we take a deep breath, and we let ourselves fall. We face all the things we were afraid of, and then some. In every health challenge journey, circumstances arise that we never expected. In my case, I had to have another surgery 3 weeks later because lymph nodes that biopsied negative came back positive in the pathology. All the nodes from that second surgery were, thankfully, negative. Then I nearly died, twice, from a life-threatening allergy to Taxol, a common chemo drug, that shut down my lungs in the middle of COVID. My oncologist at the time thought I was being overly dramatic about my side effects when in fact I was suffocating. (I fired her from my care team, and she no longer sees patients.) My pulmonology team thought my lungs might be permanently scarred and I may need to have an oxygen tank for the rest of my life. Thanks to science and diligence, I fully recovered and now I’m healthier and stronger than ever.

I spent the evening of my 5-year surgery anniversary producing and hosting NYC’s Secrets & Lies – Ghost Stories. The irony isn’t lost on me—that I nearly became a ghost myself with so much life I still wanted to live and that storytelling and creativity have been two of my greatest teachers and healers.

In the wee hours of the morning after my surgery, I woke up in recovery. High as a kite on a massive amount of drugs, my nurse ran around the hospital to find me a turkey sandwich and to this day it’s the best thing I’ve ever eaten. I happily gobbled it down, watched a Harry Potter film on my tablet, and cried enormous tears of gratitude. There was less of my body in the world, but I was still alive, still breathing, and cancer-free. My greatest wish that morning was to see the sunrise so my nurse got me out of bed and wheeled me to one of the lounge spaces in the recovery wing so I could see the sun come up over the East River and the FDR Drive. I will never forget that view.

My surgery team members came to see me before I was discharged. My plastic surgeon who had placed the first installment of my reconstruction – the tissue expanders that would go on to cause 14 months of constant pain – told me that I woke up from anesthesia very quickly, before I’d even left the operating room. I began gushing how grateful and thankful I was to the whole surgery team. She said the entire team was laughing and crying right along with me. I have zero memory of this, and I wish I’d been fully conscious to remember it. Leave it to me to bring the funny in the darkest of times!

Then my breast surgeon came to check me before discharge. Through our masks, I thanked her for saving me and she said, “Sweetie, I’m just part of the team. And every person in this hospital shows up every day with the only goal being to help you heal. And you will heal. And how you feel now – the pain and the fear – it won’t always feel this way. We’re going to get through this together.” My dear friend, Marita, picked me up from the hospital and drove me home to where my sister and my dog were waiting for me. In the following months, so many beautiful friends sent me care packages, messages, cards, and food, and came to visit me from a distance – outside and masked. The trying times we made it through! I’m so thankful for everyone who cheered me on and helped me in a million different ways. I wouldn’t be here without you.

It’s fitting that exactly 5 years at that exact time she came to see me in recovery that I had my 5-year check-up with my breast surgeon. She gave me a clean bill of health, and we talked about the next 5 years of meds. She eased my mind and soothed my heart, as she always does, with science and compassion. We have a plan to keep me cancer-free, and I feel ready to start this next chapter.

I left her office with tears in my eyes and my head, heart, and spirit filled with gratitude for every second of these past 5 years. I’m even grateful for the worst days on this journey because I got to live them. Every morning, my first thought is, “Whew, I got another one!” Long may that tradition continue.

Below are photos of me on the day of my surgery and the morning after when I woke up and saw the sunrise

creativity

How to lead when we lose

Prospect Park, Brooklyn – Fall 2024. Photo by Christa Avampato.

On this difficult day, I have some things to say about gratitude, storytelling and leadership. Hundreds of thousands of people heeded the call ~100 days ago to not do something but do everything to try to help Vice President and Governor Walz win. I’m sorry neither of them took the stage at Howard University last night to say thank you, so I will. I’m abundantly grateful to all of you, and for everything you taught me during this campaign. You showed up, generously giving your money, time, and talents. That means a lot to me. You mean a lot to me.

On leadership:
It was a huge missed opportunity that they didn’t address supporters and the nation last night. Even though we didn’t know the final count, it was important to say something, anything, and then say they’d be back today to say more. We needed them, and they left without saying a word. That’s not leadership. It doesn’t matter how disappointed they were. We’re all disappointed. They had a real opportunity to maintain a connection with people and they didn’t. They went out the back door and sent the campaign manager to talk to the crowd at Howard and the nation. Vice President Harris will deliver remarks at Howard University today at 4pm. That’s too late. They missed the moment. And sadly, tragically, their opponents didn’t. There’s a lesson in that for us, too. Leaders have to lead, even when they lose. Especially when they lose.

On storytelling:
We have to take a long, hard look in the mirror, and at the words we said and didn’t say in this campaign. We need to meet the audience where they are, listen, understand, and work together to craft a better story for all of us. We didn’t do that and the election results show it. How things have been done on campaigns in the past no longer matters because we’re no longer living in the time of “how things are done.” We need better stories and methods. We need to be better listeners and storytellers. Plato said, “Those who tell stories rule society.” That’s true then and true now.

So that’s my focus moving forward – leadership and storytelling. I’ll stay curious, keep learning, improve my craft, and get better. I’ll continue to “be a lamp, or a lifeboat, or a ladder,” as Rumi so beautifully said. I will continue to, “walk out of my house like a shepherd” every single day. I will listen and love. I hope you’ll join me.

creativity

Celebrating National Cancer Survivors Month

This year I learned June is National Cancer Survivors Month. I ended active treatment (for me, that was the end of primary surgeries, intravenous chemotherapy, and radiation) at the end of May 2021 so it perfectly coincides with my official cancer-free anniversary. 3 years on and I’m feeling terrific!

Being a survivor is daily work. Diet, exercise, medication, meditation, mindfulness, sleep, and stress-reduction are incredibly important parts of my routine helping me stay cancer-free. It can sometimes be a lonely road. Unless someone has walked this path themselves, it’s difficult to understand how it feels. My body does not look nor feel the way my pre-cancer body did. It never will. I’ve had to make peace with a new normal, scars and all. I miss my pre-cancer body and I’m grateful for the one I have. We can simultaneously carry mourning and gratitude. I carry them every day.

What I never lose sight of, not for a single moment, is that I’m extraordinarily lucky to be here at all. Even luckier still to be living a life I love and to be healthy. 2024 thus far has been challenging for me — personally, academically, and professionally. The world is a difficult place. My corner of the world is difficult, too, albeit for very different reasons. And still, I’m finding and cultivating beauty, wonder, joy, and love every day, in my work and in my life.

It’s a beautiful coincidence that this morning Brian Andreas, one of my favorite artists, posted this image that he created called Superpower. I’ll be buying this one to hang in my bedroom. It’s me. My superpower is waking up every day constantly amazed at being alive. Long may it continue.

creativity

A Year of Yes: Using this time for reflection

“Something will grow from all you are going through. And it will be you.” ~TobyMac

My medical emergency this week has offered me an opportunity for intense reflection time in every area of my life. I don’t have any answers or revelations yet. I’m still down in the weeds of it all. But I’m trying and healing. And right now, that’s enough.

creativity

In the pause: Happy Thanksgiving from New York City

23737930_10104014965393976_7867983202038481308_oA gorgeous and sunny Thanksgiving morning. Phin and I bundled up and went to Central Park. Thankful today for my sweet pup, Phineas, this gorgeous park, my homey Upper West Side neighborhood, and all dogs everywhere. And of course for all of you. Happy Thanksgiving. 🐾🦃

 

creativity

Wonder: A look back at my 2016

Today as I travel to the Philadelphia area to ring in the new year, I’m thinking about the wonderful things that happened in 2016. I opened up my wonder jar that I created in January 2016, and this is what I found:

1.) I got a new job through a recruiter on LinkedIn in healthcare working with artificial intelligence. And it came with a promotion in title and a raise to boot!

2.) I went to Cuba, a lifelong dream trip, and met some fabulous people whom I’m sure I will travel with in the future.

3.) I moved into a new apartment in a new neighborhood and discovered a whole new side of D.C.

4.) I went to Puerto Rico for a dear friend’s wedding.

5.) My amazing friends Ken and Tom got married, as did my dear friends Rachael and Jon. I was so thrilled to celebrate them and share in their joy with some of my favorite people in the world. Love wins!

6.) I made new friends, reconnected with others whom I hadn’t connected with in years, and had the best times spending time with so many friends whom I love.

7.) I turned 40, and had one of the very best birthday parties of my life thanks to wonderful friends.

8.) I finished my book Where the Light Enters, and a small press is considering publishing it.

9.) I greatly expanded my freelance writing opportunities, and am looking forward to even more of that in early 2017.

10.) Phineas came through a couple of difficult health challenges like a champ, and is now super healthy at the ripe old age of 7. We took a lot of long and happy walks together all over D.C. and we had plenty of snuggle time. I also found a great daycare / boarding place and a dog walker that take wonderful care of him.

11.) I saved a down payment with the hope of buying my very first home in 2017, and got my finances in order in a better way than ever before.

12.) I attended fun cultural events all over Washington, D.C. all year long.

13.) I had one of my collages accepted and shown at an art gallery in D.C.

14.) I expanded my personal art collection with works from all over the world that inspire me on a daily basis.

15.) I started the Breaking Bread Podcast.

16.) I had the chance to support a number of nonprofits that I admire and that make this world a better place.

17.) I greatly enhanced my cooking and baking skills, churning out some delicious and nutritious meals from my kitchen.

18.) I worked on my first television project as an Associate Producer.

19.) I learned to trust my gut more than ever before. I laughed, I smiled, and I loved.

20.) I saw a ton of great live music in D.C. including Josh Ritter, Andra Day, Elephant Revival, 2 Cellos, Janelle Monae, Rhiannon Giddeons, The American Pops, Ben Harper, and Grace Potter.

21.) I created and taught creative writing workshops for kids at 826DC.

22.) I got to shine a light on creative entrepreneurship, art, and writing through The Relational Economy, American Public Media, the Lits to Lens podcast, and the What’s Next videocast.

I’m sure 2017 will bring many more blessings and learnings. And that wonder jar was a wonderful thing. I plan to start a new one tomorrow in honor of the new year.

creativity

Wonder: A much-needed pep talk and 5 things to be grateful for every day

“You aren’t doing great, but you aren’t drowning and that is something.” ~The Secret Life of Pets (Duke to Max)

My sweet friend, Cara, has been doing an exercise on Facebook that I really love. Every day she posts 5 things she’s grateful for. These aren’t the same, stale, stereotypical responses to questions like this. She gets down into the details. These are 5 practical things that made her life better that day. They are often small things, things that we overlook all too often, and I always look forward to reading her posts. With Christmas around the bend and the new year not far behind, I’m inspired to take up this idea, too. So on my social media platforms, you’ll see a nod to 5 things that I appreciate that day. Because look, things may not be better, but recognizing the good makes me feel better, and that, as Duke would say, is something.

creativity

Wonder: The greatest lesson of life

One of the greatest blessings of being Phineas’s mom is that he makes me remember that every moment counts. There isn’t a single walk, snuggle, or smile that I take for granted with him. Yesterday when I had to take him to the ER for his back again, I was reminded, painfully so, that we have only so much time and that every day is a gift that we are never promised. Each day deserves the best we can give. There isn’t any time to waste. While I wish that realization wasn’t so heavy, maybe it needs to be. Maybe that truth is so significant that we need to feel the weight of it to really understand it.

For the next few days I’ll be home for most of the time monitoring Phineas to make sure his medication and rest is working. I’ll be writing, doing yoga, and meditating on just how lucky I am to care for a being that has taught me the most important lesson of life with absolute certainty—that we must do as much good as we can wherever we are with whatever we’ve got, and be grateful for the opportunity to do so.

creativity

Wonder: A walk through D.C. to clear my head

On Tuesday nights I play in a bocce league. I walk from my office in Arlington through Georgetown, past the White House, and then to downtown D.C. to the court. It’s a magical ~4 mile path.

Yesterday my brain was tired after work. I’m learning coding in addition to writing dialogue for our AI product, getting up-to-speed on the healthcare industry’s best practices, processing and pulling apart medical triage guidelines (with plenty of medical vocabulary that’s brand new to me!), and planning our product’s strategy, pricing, marketing, and testing. It’s a lot and I needed a good, long walk to clear my head.

As I wound my way through this city yesterday, I fell in love with this city a little more with every step. The architecture, colors, light, water, pattern of the streets, iconic symbols of our country, and people. All of it just dazzled me. It lifted me up out of my tired fog and into a state of supreme gratitude. Movement creates a movement.

creativity

This just in: Travel makes me grateful

The magnificent city of Pest as seen from Buda's Castle at sunset
The magnificent city of Pest as seen from Buda’s Castle at sunset

Travels helps me count my blessings. After a full night of sleep, I woke up this morning feeling so grateful. Grateful for the chance to travel and learn about different cultures, and grateful to live in the U.S. and call it home. Sarajevo is a sad city, plagued by geographic isolation, the legacy of the war and communism, poor health of the people (70% of them smoke), and a true lack of opportunity. Budapest is bustling, thriving, and full of life. The two are in such stark contrast to one another and couldn’t have been more different.

And then I landed at Washington National airport, and my eyes opened up even wider. We are so lucky here. We have everything we need to build a good life for ourselves. Certainly our country has problems and challenges and its own wounds that need tending and healing. What we do have is possibility and potential. And while potential alone can’t get things done, it does provide the fuel we can use to build something beautiful and meaningful.

Travel is a gift that keeps on giving. It gives us empathy and understanding for cultures not our own, and then it also helps us appreciate what we have at home in our everyday lives. It’s a realization I hope I never lose.