creativity

The 4.5-Mile Walk: What Cancer Taught Me About Resilience and Love

Me at Macy’s in NYC 5 years ago, right after my second surgery

Five years ago, I was marching from the subway to NYU hospital for yet another surgery—two weeks after a bilateral mastectomy—with the high-stakes knowledge that if cancer cells were hiding in my body, my surgeon was going in to find them. This photo memory, which Google popped up yesterday, was taken right after I left the hospital and showcases the hope I felt that day.

I had this second surgery because the lymph nodes that biopsied negative for cancer came back positive in the pathology. Out of an abundance of caution, my surgeon said she wanted to remove all the lymph nodes under my left arm to see if any of those axillary nodes were positive. (She removed all the lymph nodes under my right arm during my mastectomy, and they were all negative, thankfully.) If any nodes under my left arm were positive, that would mean the cancer could have spread. This also meant that I would be at risk of lymphedema (swelling) not only in my right arm but now in my left arm as well. 

My surgeon was devastated that this happened to me. She said, “I hate that every time you come into my office it’s a horror show. I keep pulling the rug out from under you. But I promise you this – if there’s cancer in you, I’m going in there to get it.”

While I was disappointed to have another surgery so soon and with such high stakes in the outcome, I wasn’t nervous. My surgeon’s confidence in her abilities gave me confidence in mine. I marched from the subway to NYU hospital that morning, ready for battle. I felt powerful and strong, like a warrior. I remember thinking, “Cancer, if you’re hiding in me, we’re coming for you. You can’t hide from us.”

I woke up quickly in the recovery room after surgery, completely alert and sobbing. Crying is a common reaction from anesthesia. The nurse was concerned I was crying with worry. I explained I was crying with relief and gratitude. A wave of peace washed over me: whatever the final pathology report said, we had done everything we could.

My sister came to pick me up, and she said, “What do you want to do?” I said, “I want to go for a walk.” 

We walked to Macy’s to see the Christmas decorations – that’s where she took this picture of me. Then we walked home to get my dog at doggy daycare and back home to my Upper West Side apartment. It was a total of 4 1/2 miles. Those twinkling lights, the love from my sister, and that long walk made me believe that against all odds, I’d be okay. 

We waited for a week for the results. I should have been panicked waiting for the results of the surgery. Again, I wasn’t nervous. We’d done everything we could. The results would be the results. 

While we waited, my sister and I watched every episode of The Great British Baking Show. I took naps. We walked my dog. Friends called, brought food, and sent care packages. I knew my sister was scared. She was making plans to stay with me longer, preparing for the worst.

My surgeon’s nurse practitioner called me a week later. There was a delay in the results because the lab was backed up. She was so upset I was waiting this long, and I told her, “Don’t worry. I’m not worried.”

She called me back 10 minutes later. I could hear her crying. The results were in. All the lymph nodes were negative. No sign of cancer. 

I did have some evidence of cancer cells in my breast tissue trying to escape to the rest of my body (this is called “vascular invasion”). With the mastectomy, we’d stopped them in their tracks. Still, with vascular invasion, chemo was recommended for me by a panel of oncologists that my team had consulted, not only at NYU, but at top cancer institutes across the country. So, chemo would start in a month, just before Christmas. 

Though I didn’t know at the time that the coming chemo treatments would nearly kill me twice, in that moment, standing at the precipice of a new fight, I was simply and profoundly grateful for my surgeon, the dream that drove me to get tested in the first place, my sister and friends, my dog, and every breath I took.

Last week on another long walk, I went by Macy’s on my way to meet friends for dinner. How far I’ve come since that long walk five years ago. Their theme this year of “Give Love” is spread across the outside of the building in bright lights. I smiled at those words because 5 years ago cancer showed me that giving love is the secret of life. To love and be loved in return, in all the ways love shows up in this world and in our lives, is a gift beyond measure. It’s a gift I give and receive in greater amounts every day, everywhere I go. It’s the gift that keeps on giving.

creativity

Living in gratitude on my 5-year cancer journey

Me outside the Perlmutter Cancer Center in NYC on October 29th after seeing my surgeon on the 5-year anniversary of my discharge from surgery

Last week I celebrated 5 years since the bilateral mastectomy that saved my life and removed any sign of cancer from my body. My friend, Wayne, describes journeys like this as a log flume. When we begin, we’re at the top of a terrifying drop. We’re scared, nervous, unsure, hopeful, confused, anxious. All the emotions of the human condition are raw and tumbled in our minds and hearts. We’re trying to keep our head up and our eyes ahead. we don’t want to take that plunge into the unknown. But we have to. We can’t turn around. The only way out is through.

And so, we take a deep breath, and we let ourselves fall. We face all the things we were afraid of, and then some. In every health challenge journey, circumstances arise that we never expected. In my case, I had to have another surgery 3 weeks later because lymph nodes that biopsied negative came back positive in the pathology. All the nodes from that second surgery were, thankfully, negative. Then I nearly died, twice, from a life-threatening allergy to Taxol, a common chemo drug, that shut down my lungs in the middle of COVID. My oncologist at the time thought I was being overly dramatic about my side effects when in fact I was suffocating. (I fired her from my care team, and she no longer sees patients.) My pulmonology team thought my lungs might be permanently scarred and I may need to have an oxygen tank for the rest of my life. Thanks to science and diligence, I fully recovered and now I’m healthier and stronger than ever.

I spent the evening of my 5-year surgery anniversary producing and hosting NYC’s Secrets & Lies – Ghost Stories. The irony isn’t lost on me—that I nearly became a ghost myself with so much life I still wanted to live and that storytelling and creativity have been two of my greatest teachers and healers.

In the wee hours of the morning after my surgery, I woke up in recovery. High as a kite on a massive amount of drugs, my nurse ran around the hospital to find me a turkey sandwich and to this day it’s the best thing I’ve ever eaten. I happily gobbled it down, watched a Harry Potter film on my tablet, and cried enormous tears of gratitude. There was less of my body in the world, but I was still alive, still breathing, and cancer-free. My greatest wish that morning was to see the sunrise so my nurse got me out of bed and wheeled me to one of the lounge spaces in the recovery wing so I could see the sun come up over the East River and the FDR Drive. I will never forget that view.

My surgery team members came to see me before I was discharged. My plastic surgeon who had placed the first installment of my reconstruction – the tissue expanders that would go on to cause 14 months of constant pain – told me that I woke up from anesthesia very quickly, before I’d even left the operating room. I began gushing how grateful and thankful I was to the whole surgery team. She said the entire team was laughing and crying right along with me. I have zero memory of this, and I wish I’d been fully conscious to remember it. Leave it to me to bring the funny in the darkest of times!

Then my breast surgeon came to check me before discharge. Through our masks, I thanked her for saving me and she said, “Sweetie, I’m just part of the team. And every person in this hospital shows up every day with the only goal being to help you heal. And you will heal. And how you feel now – the pain and the fear – it won’t always feel this way. We’re going to get through this together.” My dear friend, Marita, picked me up from the hospital and drove me home to where my sister and my dog were waiting for me. In the following months, so many beautiful friends sent me care packages, messages, cards, and food, and came to visit me from a distance – outside and masked. The trying times we made it through! I’m so thankful for everyone who cheered me on and helped me in a million different ways. I wouldn’t be here without you.

It’s fitting that exactly 5 years at that exact time she came to see me in recovery that I had my 5-year check-up with my breast surgeon. She gave me a clean bill of health, and we talked about the next 5 years of meds. She eased my mind and soothed my heart, as she always does, with science and compassion. We have a plan to keep me cancer-free, and I feel ready to start this next chapter.

I left her office with tears in my eyes and my head, heart, and spirit filled with gratitude for every second of these past 5 years. I’m even grateful for the worst days on this journey because I got to live them. Every morning, my first thought is, “Whew, I got another one!” Long may that tradition continue.

Below are photos of me on the day of my surgery and the morning after when I woke up and saw the sunrise

creativity

How to lead when we lose

Prospect Park, Brooklyn – Fall 2024. Photo by Christa Avampato.

On this difficult day, I have some things to say about gratitude, storytelling and leadership. Hundreds of thousands of people heeded the call ~100 days ago to not do something but do everything to try to help Vice President and Governor Walz win. I’m sorry neither of them took the stage at Howard University last night to say thank you, so I will. I’m abundantly grateful to all of you, and for everything you taught me during this campaign. You showed up, generously giving your money, time, and talents. That means a lot to me. You mean a lot to me.

On leadership:
It was a huge missed opportunity that they didn’t address supporters and the nation last night. Even though we didn’t know the final count, it was important to say something, anything, and then say they’d be back today to say more. We needed them, and they left without saying a word. That’s not leadership. It doesn’t matter how disappointed they were. We’re all disappointed. They had a real opportunity to maintain a connection with people and they didn’t. They went out the back door and sent the campaign manager to talk to the crowd at Howard and the nation. Vice President Harris will deliver remarks at Howard University today at 4pm. That’s too late. They missed the moment. And sadly, tragically, their opponents didn’t. There’s a lesson in that for us, too. Leaders have to lead, even when they lose. Especially when they lose.

On storytelling:
We have to take a long, hard look in the mirror, and at the words we said and didn’t say in this campaign. We need to meet the audience where they are, listen, understand, and work together to craft a better story for all of us. We didn’t do that and the election results show it. How things have been done on campaigns in the past no longer matters because we’re no longer living in the time of “how things are done.” We need better stories and methods. We need to be better listeners and storytellers. Plato said, “Those who tell stories rule society.” That’s true then and true now.

So that’s my focus moving forward – leadership and storytelling. I’ll stay curious, keep learning, improve my craft, and get better. I’ll continue to “be a lamp, or a lifeboat, or a ladder,” as Rumi so beautifully said. I will continue to, “walk out of my house like a shepherd” every single day. I will listen and love. I hope you’ll join me.

creativity

What I’ve learned in the 4 years since my bilateral mastectomy after breast cancer

Me today — 4 years post-surgery — outside of Perlmutter Cancer Center in New York City

Sunday marked 4 years since the bilateral mastectomy that removed cancer from my body and saved my life. I dropped off my absentee ballot for the election on October 26th, 2020 during early voting and in the depths of the pandemic before vaccines. The next day I went to NYU Langone Medical Center. The surgery was long and difficult. The recovery was painful. The many months of treatment and two additional surgeries, life-threatening setbacks, and healing were even worse. I didn’t know about any of that when I arrived at the hospital that day. All I knew then was I wanted to live, and I might not. My only goal was to wake up from that surgery and see the sunrise. And I did. Step 1, done.

After I woke up from anesthesia, I watched Harry Potter on my iPad, trying to invoke some kind of magic of my own. My angel nurse, Esther, ran all over the hospital to find me a sandwich since meal service had ended. To this day, that ordinary turkey sandwich was the best damn thing I’ve ever eaten. Then she showed me how to care for the 4 drains coming out of my body, a necessary evil after an extensive surgery.

When Dr. Schnabel, my surgeon, came to visit me, I thanked her for saving my life. Neither of us could see each other’s smiles because we were both double-masked. I remember her eyes looking deep into mine. “I’m just part of the team. Everyone in this hospital has one goal — to get you up and over the mountain. It won’t always feel like this. Someday you’re going to be very grateful you chose to take the hard road today.”

My friend, Marita, picked me up at the hospital and gave me the gentlest of hugs. I had a giant bag of meds. “How do you feel?” she asked me once I was settled into her car. I said, “I don’t know.”

Marita drove me home and handed me off to my sister, who dropped her whole life in Florida to take care of me (and my dog). My next goal was to be able to walk around my neighborhood by Halloween with my dog dressed as a pumpkin and my sister to see all the decorations and find some joy in my favorite season. Step 2, done.

My next goals — stay alive, restore my health, and thrive. Steps 3, 4, and 5, done, done, and a daily process.

I went for my annual check-up with my surgeon this morning. All clear! It happened to fall on the anniversary of that conversation we had about the choice to take the hard road. As I walked to the subway to head home in the sunshine, I thought about how right she was — she’s always right. I don’t feel the way I felt 4 years ago. Today, I’m hopeful and thankful for all of it, even cancer. We got up and over that mountain. There are so many people who made this trek possible. I was never alone in it. There were angels, guides, and teachers everywhere. There still are. The journey continues, and I’m very grateful for that.

Below: images from four years ago pre- and post-surgery.

creativity

Celebrating National Cancer Survivors Month

This year I learned June is National Cancer Survivors Month. I ended active treatment (for me, that was the end of primary surgeries, intravenous chemotherapy, and radiation) at the end of May 2021 so it perfectly coincides with my official cancer-free anniversary. 3 years on and I’m feeling terrific!

Being a survivor is daily work. Diet, exercise, medication, meditation, mindfulness, sleep, and stress-reduction are incredibly important parts of my routine helping me stay cancer-free. It can sometimes be a lonely road. Unless someone has walked this path themselves, it’s difficult to understand how it feels. My body does not look nor feel the way my pre-cancer body did. It never will. I’ve had to make peace with a new normal, scars and all. I miss my pre-cancer body and I’m grateful for the one I have. We can simultaneously carry mourning and gratitude. I carry them every day.

What I never lose sight of, not for a single moment, is that I’m extraordinarily lucky to be here at all. Even luckier still to be living a life I love and to be healthy. 2024 thus far has been challenging for me — personally, academically, and professionally. The world is a difficult place. My corner of the world is difficult, too, albeit for very different reasons. And still, I’m finding and cultivating beauty, wonder, joy, and love every day, in my work and in my life.

It’s a beautiful coincidence that this morning Brian Andreas, one of my favorite artists, posted this image that he created called Superpower. I’ll be buying this one to hang in my bedroom. It’s me. My superpower is waking up every day constantly amazed at being alive. Long may it continue.

creativity

A Year of Yes: Tell your deepest, darkest secret

Today I looked into a camera and said my weak things in a strong voice. I told my story about my intense struggles with PTSD after my apartment building fire, and how that recovery turned me into an author. I told my deepest, darkest secret, and I feel fierce and free. Link to video will be live soon.

creativity

A Year of Yes: The greatest gift we give

The most valuable gifts we can give others are our time and attention. So often what others need is just someone to really listen. Grateful for my good set of ears and my ability to offer help, support, and encouragement. We’re all just walking each other home.

creativity

A Year of Yes: Mark A. Smith’s story of surviving and thriving

Mark A. Smith posted this story on LinkedIn this week. It was so powerful for me that I have to share it with all of you. My favorite of his learnings detailed here: “No one learns in the middle of a crisis. Survive. Breathe. Reflect.” If this doesn’t personify the power of yes, then I don’t know what does. Thank you, Mark, for you bravery and tenacity. I’m so glad you’re still with us.

“23 years ago today my parents and doctor walked into my ICU room, held my hands, and told me I had only a few months to live. I had a rare disease called Wegener’s Granulomatosis and had 18 tumors throughout my lungs, kidneys, and airway.

16 years of chemotherapy, 200,000+ pills, 34 surgeries, and a million prayers later and I’m still around to annoy everyone on LinkedIn. Here is some of what I’ve learned — I’ll hope you find some value:

– We have the capacity to find joy in all things. A negative attitude is worse than a tumor. The best of life can come from the worst of life.

– Everyone has a difficult trial. Everyone. Be compassionate.

– When your looks get taken away, you better have a solid character or you’re screwed. – Priorities are revealed when abilities are stripped. Put them in order before life forces it upon you.

– No one learns in the middle of a crisis. Survive. Breathe. Reflect.

– Life is too short to take offense. Assume the best and move on. One day our children will struggle. We must endure our own trials so that, when needed, we can look in their eyes with perfect credibility and say, “I’ve been through the same struggle. I know your pain. You can do this.”

Happy New Year, my friends. Thank you for all you add to my life.”

See Mark’s post here.

creativity

In the pause: Subway by Billy Collins

Subway

As you fly swiftly underground
with a song in your ears
or lost in the maze of a book,

remember the ones who descended here
into the mire of bedrock
to bore a hole through this granite,

to clear a passage for you
where there was only darkness and stone.
Remember as you come up into the light.

~Billy Collins

New York City’s subways have a program called Poetry in Motion in which they commission works to post on our subway trains. This one by Billy Collins was posted in my subway yesterday and it was a beautiful reminder that there are so many reasons to be grateful.

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In the pause: Not getting what we want can be what we need

Sometimes not getting what we want is exactly what we need. Last year, I almost bought a home in D.C. Three times. Each of the deals fell through for different reasons. After the outcome of the Presidential election and the uncertainty in the future, I couldn’t be happier that I didn’t get what I wanted even though I felt defeated each time. Those momentary disappointments turned out to be incredible gifts that I didn’t yet understand. If you’re currently facing disappointment, and wondering why what’s happening is happening, I hope my home-buying situation is a comfort to you. Rest assured that eventually it will all make sense; the universe protects us in ways we can’t even imagine.