creativity

The 4.5-Mile Walk: What Cancer Taught Me About Resilience and Love

Me at Macy’s in NYC 5 years ago, right after my second surgery

Five years ago, I was marching from the subway to NYU hospital for yet another surgery—two weeks after a bilateral mastectomy—with the high-stakes knowledge that if cancer cells were hiding in my body, my surgeon was going in to find them. This photo memory, which Google popped up yesterday, was taken right after I left the hospital and showcases the hope I felt that day.

I had this second surgery because the lymph nodes that biopsied negative for cancer came back positive in the pathology. Out of an abundance of caution, my surgeon said she wanted to remove all the lymph nodes under my left arm to see if any of those axillary nodes were positive. (She removed all the lymph nodes under my right arm during my mastectomy, and they were all negative, thankfully.) If any nodes under my left arm were positive, that would mean the cancer could have spread. This also meant that I would be at risk of lymphedema (swelling) not only in my right arm but now in my left arm as well. 

My surgeon was devastated that this happened to me. She said, “I hate that every time you come into my office it’s a horror show. I keep pulling the rug out from under you. But I promise you this – if there’s cancer in you, I’m going in there to get it.”

While I was disappointed to have another surgery so soon and with such high stakes in the outcome, I wasn’t nervous. My surgeon’s confidence in her abilities gave me confidence in mine. I marched from the subway to NYU hospital that morning, ready for battle. I felt powerful and strong, like a warrior. I remember thinking, “Cancer, if you’re hiding in me, we’re coming for you. You can’t hide from us.”

I woke up quickly in the recovery room after surgery, completely alert and sobbing. Crying is a common reaction from anesthesia. The nurse was concerned I was crying with worry. I explained I was crying with relief and gratitude. A wave of peace washed over me: whatever the final pathology report said, we had done everything we could.

My sister came to pick me up, and she said, “What do you want to do?” I said, “I want to go for a walk.” 

We walked to Macy’s to see the Christmas decorations – that’s where she took this picture of me. Then we walked home to get my dog at doggy daycare and back home to my Upper West Side apartment. It was a total of 4 1/2 miles. Those twinkling lights, the love from my sister, and that long walk made me believe that against all odds, I’d be okay. 

We waited for a week for the results. I should have been panicked waiting for the results of the surgery. Again, I wasn’t nervous. We’d done everything we could. The results would be the results. 

While we waited, my sister and I watched every episode of The Great British Baking Show. I took naps. We walked my dog. Friends called, brought food, and sent care packages. I knew my sister was scared. She was making plans to stay with me longer, preparing for the worst.

My surgeon’s nurse practitioner called me a week later. There was a delay in the results because the lab was backed up. She was so upset I was waiting this long, and I told her, “Don’t worry. I’m not worried.”

She called me back 10 minutes later. I could hear her crying. The results were in. All the lymph nodes were negative. No sign of cancer. 

I did have some evidence of cancer cells in my breast tissue trying to escape to the rest of my body (this is called “vascular invasion”). With the mastectomy, we’d stopped them in their tracks. Still, with vascular invasion, chemo was recommended for me by a panel of oncologists that my team had consulted, not only at NYU, but at top cancer institutes across the country. So, chemo would start in a month, just before Christmas. 

Though I didn’t know at the time that the coming chemo treatments would nearly kill me twice, in that moment, standing at the precipice of a new fight, I was simply and profoundly grateful for my surgeon, the dream that drove me to get tested in the first place, my sister and friends, my dog, and every breath I took.

Last week on another long walk, I went by Macy’s on my way to meet friends for dinner. How far I’ve come since that long walk five years ago. Their theme this year of “Give Love” is spread across the outside of the building in bright lights. I smiled at those words because 5 years ago cancer showed me that giving love is the secret of life. To love and be loved in return, in all the ways love shows up in this world and in our lives, is a gift beyond measure. It’s a gift I give and receive in greater amounts every day, everywhere I go. It’s the gift that keeps on giving.

creativity

My golden hour wish for NYC

Golden hour sky tonight in my neighborhood

To be alive and healthy in a world with golden skies is no small thing. I went for a walk tonight in my beautiful Brooklyn neighborhood to clear my head, open my heart, and lift my spirits.

On that walk, I let myself hope for a brighter, better future. I let myself imagine my city transforming into a place where generosity and justice become an engine for progress.

I want New York City to become healthier, greener, safer, and more equitable for all beings who call this home. A place where dreams come true are not 1 in a million, but within reach for everyone who works hard and lifts others as they rise.

And I believe we can make all of that a reality, together, one day at a time.

Below are more photo from my walk tonight through Prospect Park.

creativity

Head, Heart, and Hands: The Great Triumvirate of Change

Image created by Christa Avampato.

I just attended Dr. Katharine Hayhoe’s Climate Week NYC talk at the American Museum of Natural History, and it was the most empowering climate message I’ve ever heard. It reframes the entire discussion around three simple ideas: Head, Heart, and Hands.

A research-backed truth: Dr. Hayhoe shared that most people in this country and in the world (~60% on both counts) are worried about climate change. We, the worried, don’t need more doom and damning data to get us concerned because we’re already there.

The challenge: Even though we’re worried, we aren’t taking enough action to alleviate our worry because we don’t know what to do about it.

The solution: Sync up our head, heart, and hands – what I’m calling the great triumvirate of change – and sync with others.

Well, that’s all well and good, but how do we do that? Dr. Hayhoe’s advice: Get clear about what we care about, how climate change will impact what we care about, find others who care about what we care about, and start talking!

Here’s our action plan:

Head: Define Your Why. Clearly identify exactly why you’re worried. Finish this sentence: “I care about climate because I care about…” How is your personal well-being, favorite place, or dearest value already being affected by climate change? Keep it simple, personal, and jargon-free.

Heart: Connect to Community. Now that you know what you care about, find communities, groups, and individuals who share that passion and are also affected by climate change.

Hands: Turn Conversation into Action. Get in touch with those communities and start talking about your shared worries and values. That act of conversation and connection will lead to meaningful, collaborative action or project to protect what you care about.

Climate change will affect everything everywhere all at once. It is a global issue, and no one will escape it so no matter what you care about, it will be impacted and there are communities of people who care about it, too. Let’s dive into an example from my personal life to see this action plan come to life.

An example:

Head: I’m worried about climate change because I love New York City. Since most of our city is at or near sea level, we will be subject to serious impacts from sea level rise, and we have a lot of issues now with rain flooding the streets and subways – our main modes of transportation. We also have a lot of people living in a small amount of space so there is a lot of pollution that impacts our health and well-being, and often crowds out green space, which is causing more heat, dirtier air, and health issues.

Heart: I love this city, and I do believe we can make it greener, cleaner, and healthier for all beings who live here – people, pets, wildlife, and plants. I want to find other people who also care about nature in NYC.

Hands: I run a live storytelling game show called NYC’s Secrets & Lies all about the secret history of NYC. This month, I decided to make the show all about stories related in nature in NYC and applied to have it become an official Climate Week NYC event. They accepted it (hooray!). I found a terrific venue – a hidden theater inside Port Authority Bus Terminal (a great tie into the transportation issues impacted by climate change here in NYC!) We had a wonderful cast of storytellers who were enthusiastic about the topic and told a wide range of stories. I also invited Josh Otero from the Natural Areas Conservancy to be our special guest to talk about all of the amazing work they do to make NYC greener and healthier. We had a sold-out show with a waitlist of 33 people, and all of the stories talked about interesting aspects of the history of nature in NYC. We had so much fun, and it was a great way to get the message out there! This show gave me a place to put my worries about climate change and turn them into action with others. I’m planning to do more of these shows – stay tuned!  

Our climate anxiety is reaching new heights and as Dr. Hayhoe explained, the way to use that anxiety for good is through stories. Storytelling is about conversations. Every great idea, every meaningful action, every ounce of change – it all begins with a conversation. Get out there, start talking, and see what change you can create with others.

creativity

Signs and teachings of spring in times of darkness

London Plane tree with vines

While we grapple with the battle that lies ahead in our country, I’m finding joy, solace, and rest when I need it in nature. I’m fortunate to live in a neighborhood in New York with a lot of green space. I’m close to Brooklyn’s Prospect Park and my neighborhood’s streets are lined with towering London Plane trees that are nearly 130 years old.

When I walk outside of my apartment, I always pause to look at the trees on my block. They have seen so much change, and have continued to rise, to survive. In my meditations, I imagine myself as one of them, reaching ever upward toward the light.

As I was coming home last week, I saw a small vine, climbing up the side of one of the London Plane trees. Small and purposeful, determined to defy gravity through its efforts, on tiny step at a time. How can we keep moving forward, reaching up, even as forces attempt to drag us back?

Crocuses

On a particularly cold day, I saw the crocuses pushing through the bare, frozen ground. They would not be kept from the sun any more. It was time to bloom. I saw them in a small garden at Bowling Green near the ferry terminal, waiting for my friend, Ashley, so we could go together to Ellis Island. (More on that adventure in a separate post.)

“Aren’t they beautiful?” I heard a man’s voice say.

“They are,” I replied as I turned to face him. “Crocuses are small and mighty flowers.”

“What did you call them?” he asked me.

“Crocuses,” I repeated. “They’re the first flowers to bloom. They tell us spring will be here soon.”

“You mean they tell us we made it? We made it through winter?” he asked.

I laughed. “Yes, that’s right. We made it.”

We high-fived. “I learned something today. Miss, God bless you. I’m gonna tell the people who take care of this garden about this.”

I’m stilling think about this man’s joy as he realized we had made it through, that perhaps our best days are still ahead of us. How can we hang onto that idea in the midst of turmoil?

Daffodils in Prospect Park

March’s flower is the daffodil. As a March baby, I always associate their arrival with my birthday. It’s also the official flower of New York City. My dear soul dog, Phineas, loved to put his beautiful, formidable snoot right into them when we’d walk together in Central Park so they always remind me of his beautiful spirit.

My soul dog, Phineas, smelling daffodils in Central Park

On my way to an appointment on Thursday, the first day of spring, I smiled as I saw legions of daffodils swaying in the soft wind. Nothing would keep them from heralding a new season. Nothing would keep them from their joy. Not the rain or the cold or the grey skies. They were born to sing. So are we.

creativity

Combating Parkinson’s with rock climbing

Photos from https://www.upendingparkinsons.org/

“It’s nice to be good at something again.” 

I haven’t been able to get this sentence out of my mind. It was said by a 37-year-old man who was diagnosed with Parkinson’s, a neurological disorder that has begun to impact his gross and fine motor skills. He was featured in a news story about Up ENDing Parkinsons, a nonprofit that’s created a nationwide rock climbing program for people with Parkinson’s disease. 

This man mentioned he can no longer do things that he used to take for granted — typing, for example. To see him scale a rock climbing wall at this gym, you’d never know he was struggling to move. The journalist told him this and he got choked up. 

“This means a lot to you,” said the journalist. 

He nodded his head, cleared his throat, and said, “It’s nice to be good at something again.”

Parkinson’s has robbed this man of so much at such a young age. This program has given him back some joy and a sense of pride in himself. The value of that can’t be overstated. 

This story was a reminder to me that we all want to feel we’re good at something. I hope we can all take the time to recognize and acknowledge when those around us are good at something. It takes only a small amount of time and effort on our part, and yet the impact for the person receiving this acknowledgement is enormous. We never know just how much someone may need to hear that. The world is a difficult place right now, and many people feel broken. Let’s do our best to help people feel whole again, and lift them up whenever we can. Feed the good.

creativity

Another hopeful cancer milestone

Today I graduated from 6 month exams with my breast surgeon to 1 year exams. Being 2 years cancer-free is a huge milestone because the risk of recurrence drops significantly.

I’m so grateful to my medical team at NYU Langone Health, friends, and family who helped me restore my health. Celebrating today and every day.

If you or someone you love is facing cancer, please know there are millions of us out here with stories of triumph, resilience, and renewal. We may get knocked down but we can rise stronger, braver, wiser, and healthier with more love and more compassion than ever.

This is my story and it can be yours, too. Eyes up. Keep going.

creativity

Joy Today: Jeff Goldblum & The Mildred Snitzer Orchestra

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This picture is Stephen Colbert holding Jeff Goldblum’s new album

Jeff Goldblum blew my mind with his spoken word on The Late Show with Stephen Colbert when he recited this passage by George Bernard Shaw as the way he keeps his hopes up during the Trump administration:

“This is the true joy in life, the being used for a purpose recognized by yourself as a mighty one; the being thoroughly worn out before you are thrown on the scrap heap; the being a force of Nature instead of a feverish selfish little clod of ailments and grievances complaining that the world will not devote itself to making you happy.

I am of the opinion that my life belongs to the community, and as long as I live, it is my privilege to do for it whatever I can. I want to be thoroughly used up when I die, for the harder I work, the more I live. Life is no ‘brief candle’ to me. It is a sort of splendid torch which I have got hold of for a moment, and I want to make it burn as brightly as possible before handing it on to the future generations.” ~George Bernard Shaw

I was lucky to see Jeff Goldblum live with his band a few years ago at Rockwell Table & Stage in LA. My friend, Trevor, pointed out to me that Jeff Goldblum was playing here with his band on a regular basis. A couple week later I wandered in with a date after dinner in Los Feliz and it was a magical experience. (The guy didn’t last mostly because he didn’t enjoy Jeff Goldblum as much as I did, but my love of Jeff and his music certainly did.) I’ve been listening to and loving his music ever since, all thanks to my friend, Trevor. Give his new album, The Capitol Studios Sessions, a listen. It’s wonderful.

creativity

Joy Today: Your fire is a kiln

Remember that a fire can also be a kiln. Whether it consumes you or improves you is all about your perspective. I’ve had a very difficult 24 hours. This point-of-view and great friends got me through. If you’re going through a tough time, I hope this idea helps you, too. Sending you love.

creativity

A Year of Yes: Happy Thanksgiving

“It is in collectivities that we find reservoirs of hope and optimism.” ~Angela Davis

I’ve been thinking a lot about this quote lately, considering why we gather to share experiences and stories. And for me it’s exactly what Angela Davis says here: to find hope and optimism for a better tomorrow. Happy Thanksgiving to you and yours.

creativity

A Year of Yes: Writing at dawn

Sunrise over the River Liffey by Christa Avampato
Sunrise over the River Liffey by Christa Avampato

“The breeze at dawn has secrets to tell you. Don’t go back to sleep.” ~Rumi

When everything’s quiet, late at night and early in the morning, there’s a magic time when anything we dream with raw creativity and hope. That’s when I write, when I’m fearless.