Tag: self-care

creativity

Unleashed: How I Used AI to Find Affordable Acupuncture for Cancer Care Relief

Christa Avampato
Photo of me post-acupuncture

On Monday, I felt like I walked through a portal into a different world. Not through a book or movie, but in real life. This is a story about determination, the power of technology to improve our health, and the desire to heal through a combination of Eastern and Western medicine.

The Long Tail of Cancer Treatment

When I went through ACT chemo, a notoriously difficult treatment, I received acupuncture with Ryan Smith after every round. I responded exceptionally well, experiencing fewer side effects than most because of acupuncture. Now five years into cancer survivorship, I face a lot of daily side effects that I need to manage: fatigue, pain, anxiety, hot flashes, insomnia, and weight management are just a few of them. In August, my med regimen changes because I am (thankfully and gratefully!) five years out from active treatment and disease-free. Med changes are frightening for me because when I transitioned from ACT chemo to Taxol, Taxol nearly killed me twice. It turns out I have a deathly allergy to it and I received dense-dose treatment. So, add that to my anxiety load.

I knew acupuncture could help with these side effects and ease my August med transition. However, the cost of regular individual sessions has gotten prohibitive in NYC, where I live. I searched relentlessly for an acupuncturist skilled at cancer survivorship who also took my insurance. I came up empty-handed every time. For years, I heard the common refrain: acupuncturists do not take insurance. Stop looking, bite the bullet, and pay the small fortune as an investment in your health.

And then I tried one last time. I called United Healthcare, my insurance company, to ask if I could submit partial reimbursement for anyone in their network. The agent came back with something even better: a list of medical doctors practicing acupuncture in my insurance network. I was floored. And then I immediately assumed the experience would not match the care I received from Ryan during my chemo days.

Hacking the System with AI

I popped the list of providers into AI, explained my needs, and asked if it could identify a doctor who met my criteria. AI returned one name and identified the perfect provider for me: an MD, MPH, and acupuncturist who takes my insurance, conveniently located in midtown Manhattan at NYU Langone (where I already get all my medical care) with stellar reviews of 4.8 out of 5 stars after almost 3,000 patient ratings. Rather than paying almost $200 per session, I will pay my $40 co-pay. My mouth fell open. Could this be the diamond I searched for all these years?

I went in for my consultation a month ago, and in 15 minutes he showed me exactly how acupuncture could alleviate my side effects because they all stem from my body’s structure. I wrinkled my forehead. Structural? He explained the radiation I received on my left side essentially split my body in half, tightening my entire left side from my neck to my toes, which directly contributed to my symptoms. Through a few quick mobility tasks, he demonstrated that the strength and flexibility of my right and left sides were so different it felt as if I was two different people. All of that tension originated from the radiation on my left side, causing my left shoulder to tighten and roll forward compared to my right. Acupuncture, over time, could unblock all of that, allowing us to reteach my left side how to stay open.

I told him I believed completely in the power of acupuncture, and he said I did not have to believe. I will actually see the effects after every session. We do mobility tests before the treatment, and then we repeat the mobility tests afterward.

The Moment of Release

On Monday, he combined acupuncture, heat, and electrode stimulus for my first session. My body accepted the treatment so readily that my left side was actually freer than my right side post-treatment. Even he was surprised at how much my body wants to heal. That release lasted for about 72 hours. Not bad for being crunched for five years. As I left the office, I felt my life begin to shift. I felt unleashed.

What Comes Next

Our plan includes weekly sessions for four weeks. Then we will re-evaluate. We also plan to try a few other complimentary treatments, including a saline drip he developed to release the layers of fascia in my scar tissue from one another. I cannot wait to see what lies ahead, and how healing myself will help heal the world around me. And I cannot wait to share it all with you.

creativity

My back, my base, my safe space

Christa Avampato
Me learning to take care of me

3 weeks ago, I hurt my back volunteering at a dog adoption event. Old shoes. 8 hours standing on concrete in cold weather. Lifting things far too heavy for me to lift alone and lifting them incorrectly. Anti-cancer meds for 5 years that impact my joints, muscles, and bones. A strenuous workout 2 days before. A big grocery shop and carry that evening. It was a recipe for a back emergency, and I’d served it up to myself like a master of disaster.

Healing isn’t linear; it’s a continuum. The last few weeks have been a bumpy road. I went to my oncology appointment on Tuesday. (I go every 3 months to see my team, get bloodwork, and get a shot and infusion.) I was in the waiting room for 30 minutes and wondered why I hadn’t been called for my bloodwork yet. They forgot to tell me I needed to go to a different floor. I was worried all my appointments would now be delayed so I grabbed my bag in a hurry and threw my back into a spasm. I yelped.

Then of course my blood pressure and one of my blood levels that’s a marker for muscle damage was slightly elevated (weeks of back pain will do that.) With great empathy and understanding, my doctor gave me muscle relaxers. She said to come back in a month to recheck that blood level. “I’m not at all worried, Christa,” she said. “But I know you and I know you’ll worry so we’ll recheck for your peace of mind.”

When I got home, I sunk into a warm bath and cried because my back hurt; I hate the side effects of my meds; I miss my dog, so much of life feels unfair and out of my control. Sometimes it all feels like a house of cards; one shakes and the tower falters. So, I let it crash around me, shattering.

I pulled myself together and got out of the tub. A few minutes later the full extent of the spasm really kicked in. The pain surged to a frightening level-10/10– like my body was breaking. I gobbled the muscle relaxer and climbed into bed, praying it would kick in. I tried to empty my mind and count my blessings. Then I just let the thoughts come without trying to direct them. I had survived so many dark nights before. Surely this couldn’t be as bad as the worst of them. I woke up 10 hours later. Stiff but the terrifying knot in my back was gone, replaced with a dull ache.

For the next few days, the pain kept moving around my back. My body was trying to re-center herself. Trying to protect me while also asking my mind for help. I was so afraid I’d never feel better. Now would I always be a person with a bad back?

I called my friend, Alex, which I often do when I don’t know what to do. As always, she talked me down off the ledge. It turns out I don’t have a bad back, I had a battered back. Alex assured me all my fears were normal. Get yourself a friend like Alex. Learning to move in a different and ever-changing body requires effort. With this injury, my mind and body were doing the necessary work. When we got off the phone, my back felt better. The next day it felt even better. I turned the corner thanks to muscle relaxers, heat therapy, massage, a sauna visit, stretching, time, and Alex. Healing isn’t a solo sport; it’s as much about community as it is about medicine.

Our back is the foundation of our health and ability to move, literally and figuratively. When the foundation falters, everything built on top of it shifts. We have to maintain the foundation. Castles in the air don’t rise. They need a stable base, and so do we. Rest, heat, stretch, repeat until the healing’s complete.

My back showed me I’ve been holding myself back on a number of fronts, and I’m done doing that. As my therapist, Brian, has told me many times, our injuries often come to hone us, not harm us. It’s worth the time and energy to do this fundamental work. We are worthy of our own time, attention, and care.