creativity

Write every day: Falling apart, falling together

When things are falling apart, something new is falling into place. A cancer diagnosis feels like this. It’s a long and winding road that you have to take one step, one day, at a time because the next step is all you can see. Uncertainty abounds.

You put your trust and faith in science. You pay attention to your body like never before. You lean on friends. You rally, you fall, you rally again.

It’s a rollercoaster mentally, physically, and emotionally. You learn what matters most. And in all the difficulties, you do find joy and gratitude and light. They aren’t always easy to see and sometimes you need a good cry to clear away the haze.

So you call a friend and you cry and then you get up again because that’s all you can do. The sun rises every morning and so do you.💛

creativity

Write every day: Knowledge is power in healthcare

Me at New York Public Library with the lions, Patience and Fortitude

Knowledge is power, my loves. This journey to kick early-stage breast cancer in the a$$ will require patience and fortitude. I’ve got my lions and we’re going to rooooooooar! We’re also going to vote because every person deserves the kind of care I’m getting at NYU Langone.

I went for an MRI and it wasn’t bad at all. Sort of sounds like a cacophonous modern classical composition. On a medical espionage mission, we are going to use the best science to find out what the hell this cancer is up to and show it no mercy.

My MRI results showed that there might be a second lymphnode involved in my breast cancer. I had it biopsied and it’s completely normal. I was so happy I could’ve done cartwheels down 5th Avenue.

As I looked around the hospital room at NYU, all I saw was a sea of people who have dedicated their lives to restore my health. There was such a swell of gratitude in my heart for all of them. In a world of cancer, there are many blessings on the road to wellness. My care team is a gift.💜

It feels odd to celebrate anything just after being diagnosed. Brian, my therapist, said celebrating every single win is crucial to healing. It’s a part of the journey. It’s medicine I’ll gladly take.

Now let’s go crush cancer.

creativity

Write every day: How to advocate for cancer care

So many incredible people have asked me what they can do to help me through this time. I’m so grateful for the love and support and I know I will need a lot of it in the year ahead. Today, here’s what would help most:

– Vote on November 3rd to protect healthcare and the environment

– Write to your representatives—federal, state, and local—to advocate for better access to early health screening

– Call your doctor to get your annual physical and discuss the screenings you should get

– If you’re a woman 40 or older and haven’t had a mammogram in the past 12 months, please make an appointment to get one. It could save your life, just like it did mine.❤️

****

If you’re wondering what to say in a letter to your reps, this is the letter I wrote to New York’s Governor Andrew Cuomo yesterday.

Dear Governor Cuomo,

I have appreciated all you’ve continued to do to keep New York safe during the COVID-19 pandemic. Now I’m especially appreciative because on Monday, October 5th I was diagnosed with early stage breast cancer. I’m 44 years old and this was my first routine mammogram. I have no symptoms and had no idea anything was wrong until I was screened.

Within 100 hours, I went from diagnosis to care plan with a top-notch medical team at NYU Langone. Exemplifying New York Tough, I’ve chosen to have the most extensive surgery—a double mastectomy with reconstruction—so I don’t give cancer anywhere to hide.

Despite a cancer diagnosis during breast cancer awareness month in the middle of a global health pandemic and less than a month before the most critical election in modern history, I’m lucky. I was able to get an appointment to be screened despite COVID. I have insurance that I buy through the NY Health exchange because I run my own business, and I have access to the best medical care that exists. Every person going through cancer should have what I have. Most don’t, and that has to change.

I also advocated with my doctor for a mammogram before one was due. The CDC and and American Cancer Society guidelines recommend mammograms starting at age 45 for women of average risk. If I had waited a year, who knows where I would have been by then. And sadly, that’s where so many people find themselves. We can change that, and we must.

I’m writing to you to find out how I can assist in the following:

Change the guideline for routine mammograms from 45 to 40 in New York State and make them easier to get

– 4 years ago, the CDC and the ACS changed the guideline from 40 to 45. I have read the medical research on why this decision was made. Given my own personal circumstances, I believe that New York should issue its own recommendation of age 40. Though people who work in cancer care adamantly opposed the change to 45, it was made anyway. This has put thousands of young women like me at risk of having their cancer undetected until a much later stage.

– Additionally, the process to get a mammogram is absurd. You have to get a prescription to a screening center from your doctor. In my case, my insurance changed in January and my former doctor doesn’t take my current insurance. So I had to find a new doctor, which can be a difficult process in New York, to get a prescription in order to get a mammogram. I was extremely lucky that I got a referral from a friend, could get an appointment with a doctor who was accepting new patients, and doctors’ offices finally opened again now that the COVID numbers have dropped. A woman should not have to jump through this many hoops and pray for good luck in order to take care of her health. We should be able to walk into any screening center, present our insurance card, and get a screening once per year. The process should be as routine as getting a flu shot because our lives depend on these screenings.

Mitigating climate change to reduce the impact of cancer

– Every two minutes, a woman in the U.S. is diagnosed with breast cancer. Most of them have no family history of the disease and their cancer is environmentally-driven. We are surrounded by toxicity in our air, water, soil, food, and consumer products, and most of it is difficult at best for any of us to escape. We are not apart from nature; we are a part of nature. We need policies that show we understand that.

As a biomimicry scientist and product developer, I’m determined to help New York City become the healthiest and most sustainable city in the world. I know this is a goal you also believe in and I’m hoping there’s a way I can be a part of your broader plan for New York City and the state as a whole.

Again, thank you for your leadership and commitment to the people of New York. I don’t know what we would have done without you at this time. When there is so much to worry about in the world, I’m grateful that in New York we’re taking care of each other by being smart, united, disciplined, and loving.

I look forward to hearing from you or a member of your team, and helping make New York healthier for all people.

Ever upward,
Christa Avampato

creativity

Write every day: My cancer journey begins

This is the face of someone with early stage breast cancer. It’s also the face of someone who is going to kick the sh*t out of cancer and give it nowhere to hide in my body. And in the process, I’m becoming a warrior of women’s health.

This is the longest I’ve ever been away from this blog since I started it in 2007. Now I’m back to tell you what’s happening. I have cancer, early stage breast cancer to be precise. I went for my biospies on September 28th and 29th, got a preliminary diagnosis of cancer, and then on October 5th received the confirmed diagnosis. 100 hours later, I had a full medical team, a surgery date, and a preliminary treatment plan that will be confirmed after surgery. NYU Langone Health moved mountains, and fast, to make it all happen and I’m so grateful.

It was the most terrifying week of my life. I wish none of us ever had to be on this journey at all, though since we’re here at this point I will make something meaningful and beautiful from it that helps me heal, helps other people heal, and helps the planet heal.

First thing’s first—I need this cancer gone from my body so here’s the plan:

– I will have surgery on October 27th. I chose to have a bilateral mastectomy with reconstructive surgery. I knew this procedure was right for me as soon as I was diagnosed. I will live a very long, healthy life and not give cancer any place to hide.

– After that, the doctors will run the pathology post-surgery and we’ll come up with a course of treatment. With all that information, we’ll be able to figure out a combo of chemo, radiation, immunotherapy, and/or medication.

– I will have a few subsequent surgeries in the coming year both for treatment purposes and reconstruction. (If, like me, you really geek out on the science, here it is in a nutshell: my cancer is estrogen positive, meaning cancer feeds it. To shut down its supply line, we’ll use a combo of medication and removal of my ovaries. In a world of crappy breast cancer this is a good thing because it’s an added layer of treatment that wouldn’t be available to me if my cancer was estrogen-negative. Small victories that actually aren’t so small at all!)

What I do know with absolute certainty is that I’m shutting down this cancer party with a top-notch medical team at NYU and that your love and support is what got me to this headspace where I feel strong and empowered.

I’m suited up for battle. Now let’s do this. The dawn after the darkness is coming and we’ll be ready to meet it when it does.

creativity

Write every day: A little health news

Just me.

A little news. I went for my 3D mammogram and ultrasound on Monday. My doctors want to do further testing in 3 areas that look a little suspicious. I’m having biopsies on Monday and Tuesday.

To be honest, the news was a shock. I just didn’t expect anything to come of this second set of tests and I broke down in the doctor’s office. Then I was counseled by many very wise friends, family members, and doctors that this next set of tests may very likely prove to be benign.

For now I’m counting my blessings that I have incredible care at NYU Langone and Caremount Medical, health insurance, and many friends who have shared their experiences that are very similar to mine.

A younger me would have bottled up these fears I have. I would have just carried them on my own because I didn’t want to burden anyone else with them. Over the last few years I’ve been trying to be better about asking for help, even if it’s just for good thoughts.

Asking for help is hard for me but if 2020 has taught me anything it’s that we need each other to make it through. And reaching out to people to ask for advice and help really helped me today. Doing what was hard was absolutely worth it.

For the next week, I’m planning to compartmentalize all of this and keep living my life as I would have before this new testing recommendation. I’m sure scary thoughts will creep in here and there. I’m sure I’ll cry. And I’m also sure that I’ll keep going—enjoying each day, taking care of myself, and taking care of others.❤️

creativity

Write every day: Justice Ruth Bader Ginsburg

Justice Ruth Bader Ginsburg

The GOAT. Forever. For always.

Justice Ginsburg will be the first woman to lie in state. Even in death, she breaks barriers.

Her fierce support of others, determination to beat disease over and over and over again, and passion for creating a better world for all people is a model we should all aspire to. We are powerful, in our own person and as a community. We matter.

She is gone now, and her memory must be both a blessing and a revolution. She stood up for all of us for so many years. Now it’s time for all of us to rise for her legacy and for each other.

creativity

Write every day: Contact these 20 GOP Senators

Today I woke up ready to fight for a better world. We have 45 days left to replace president 45. First thing on my to-do list: contacting the 20 (!) GOP senators who promised not to replace a Supreme Court Justice in an election year. My first job out of college was as a legislative aid for a Congressman in his D.C. office. Every call, email, and letter is logged, reported, and responded to. Contacting them matters.

PLEASE FLOOD THEIR INBOXES ASKING THEM TO NOT VOTE FOR A SUPREME COURT REPLACEMENT UNTIL AFTER THE PRESIDENTIAL AND SENATE INAUGURATIONS.

Please be respectful, concise, and clear no matter which method of contact you use. Say who you are, where you’re from, and state your purpose for contacting them as succinctly as you can. Have a script.

I looked up all their contact info for you and below is a link to a story with their direct quotes and the sources of those quotes for most of them. Please share this information and contact them. We don’t have any time to lose.

Sen. Lisa Murkowski (R-Alaska)
https://www.murkowski.senate.gov/contact

Sen. Mitt Romney (R-Utah)
https://www.romney.senate.gov/contact

Sen. Susan Collins (R-Maine)
https://www.collins.senate.gov/contact

Sen. Cory Gardner (R-Col.)
https://www.gardner.senate.gov/contact-cory/office-locations (email link is at the top of this page above the office contact info)

Sen. John Cornyn (R-Texas)
https://www.cornyn.senate.gov/contact

Sen. Ted Cruz (R-Texas)
https://www.cruz.senate.gov/?p=email_senator

Sen. Lindsey Graham (R-S.C.)
https://www.lgraham.senate.gov/public/

Sen. Marco Rubio (R-Fla.)
https://www.rubio.senate.gov/public/index.cfm/contact

Sen. Jim Inhofe (R-Okla.)
https://www.inhofe.senate.gov/contact

Sen. Chuck Grassley (R-Iowa)
https://www.grassley.senate.gov/contact

Sen. Joni Ernst (R-Iowa)
https://www.ernst.senate.gov/public/index.cfm/contact

Sen. Thom Tillis (R-N.C.)
https://www.tillis.senate.gov/

Sen. David Perdue (R-Ga.)
https://www.perdue.senate.gov/connect/email

Sen. Tim Scott (R-S.C.)
https://www.scott.senate.gov/contact

Sen. Ron Johnson (R-Wisc.)
https://www.ronjohnson.senate.gov/…/index…/email-the-senator

Sen. Pat Toomey (R-Penn.)
https://www.toomey.senate.gov/contact

Sen. Richard Burr (R-N.C.)
https://www.burr.senate.gov/contact

Sen. Roy Blunt (R-Mo.)
https://www.blunt.senate.gov/contact/contact-roy

Sen. John Hoeven (R-N.D.)
https://www.hoeven.senate.gov/contact

Sen. Rob Portman (R-Ohio)
portman.senate.gov/meet/contact

Article from Mother Jones with quotes about by Senators about replacing a Supreme Court Justice in an election year:
https://www.motherjones.com/2020-elections/2020/09/a-long-list-of-gop-senators-who-promised-not-to-confirm-a-supreme-court-nominee-during-an-election-year/

creativity

Write every day: Prince Phineas turns 11 on his 10th Gotcha Day

10 years ago today I adopted this darling dog, Phineas, and he’s been my best friend ever since. I had planned to foster him and within 5 seconds of him wiggling his little self into the lobby, I fell in love. In Hebrew, Phineas means “oracle”. He was meant for me and I was meant for him.

He was about a year old when I adopted him and I made that day his birthday so today he celebrates 11 years of life just as the Jewish New Year begins with Rosh Hashanah. May the light that Phineas has brought into my life be something we all have in this year ahead. Happy birthday, Phin. L’shanah Tovah (שנה טובה) to all who celebrate this day.

And hats off to my mom. The day I adopted Phineas my mom kept him for the weekend because I was going to a friend’s wedding. I will never forget when my mom and Phin first met. It was like they’d known each other forever. She took the picture on the right above on this day 10 years ago which is the first picture I have with Phin!

creativity

Write every day: How all writing begins

Photo by hannah grace on Unsplash

Every piece of writing ever written by anyone starts life as a sh*tty first draft. My PhD research proposal is now in this sh*tty first draft phase. When I submit it with my applications it’ll be polished and shiny. It’s important to remember that all beginnings are messy. Editing makes the mess meaningful.

creativity

Write every day: Giving blood is an easy way to help others

Giving blood is one of the fastest, safest, and easiest ways to help others. Start to finish, it takes less than an hour and your donation saves 3 lives. At New York Blood Center you get to be a hero, you’re required to eat cookies afterwards, they give you a very cool mask, & they have an amazing staff!

Blood supplies across the country are critically low because so many blood drives have been canceled due to COVID. If you’re able to please contact your local blood center to donate.