family, health

My Year of Hopefulness – Second Opinions

Mom’s had a bum knee for a few years that’s gotten progressively worse. It’s to the point now where to walk comfortably she needs a cortisone shot. Total knee replacement is inevitable and she is now an excellent candidate for the surgery. She went to see a physician who was recommended to her by her doctor. With a near absence of customer service, he told her she’d be back to work in two weeks. And he could probably schedule her for surgery some time in the next few months.

Total knee replacement is an incredibly invasive procedure. It hurts. A lot. And the only way through the pain is to keep moving. Lots of physical therapy, before and immediately after. To say that someone could be back to work in two weeks is ludicrous according to my dear friend Ken who works in a physical therapy clinic. “8-12 weeks is more like it,” he told me. “And those stairs in her house? She won’t be able to use them for a few weeks either.”

We went off to see a new surgeon today. I refused to let the first surgeon work on her. This second opinion was the right way to go – the doctor spent a lot of time with her, answered all her questions and concerns (and mine), and gave her the straight story about what she could and should expect. 8-12 weeks off from work and yes, she’d be best off to go to a nursing facility for a few weeks right after the surgery. Oh, and he can perform the surgery as early as May 18th. He recommended a class for her to go to at our local hospital’s joint clinic run by a top-notch physical therapist who will answer all of her questions. She left actually looking forward to total knee replacement.

On the train home, I thought a lot about second opinions and the importance of getting them for so many situations in our lives. It’s easy and less time consuming to snag the closest opinion and run with it. It’s easier still to not seek out any opinions and just do whatever we want. The value of two or more opinions is that you get a few different views of the world from varying vantage points and levels of experience.

With these remarkably uncertain times we’re living in right now, the value of second opinions can’t be overstated. We need to take a 360 degree look at every challenge and decision we’re facing and opinions from different, non-associated parties can help us do that. It’s advice we can all use, whether we’re considering a new knee, a new job, a new city, a new relationship. After all, “none of us is as smart as all of us.”

health, healthcare, philanthropy, sports

My Year of Hopefulness – Row for Hope

At 25 years old, Paul Ridley is the youngest American to row across the Atlantic Ocean alone. It took him 88 days and he rowed almost 3,000 miles. Paul and his sister, Joy, started an organization called Row for Hope in 2001 in honor of their mother who passed away from cancer. Row for Hope is a fundraising organization for cancer research.

In the CNN article I read about the journey, the line that stood out for me was when Paul how he decided to put this effort together with his sister. “I was a rower at Colgate University. I love the sport. I’m not a scientist, but I can row,” he said. Paul looked at what abilities he had, what contribution he wanted to make, and found a way to put the two together.

In addition to raising money for cancer research and awareness of the disease, Paul and Joy also want to encourage other athletes to take up efforts similar to Paul’s Atlantic Ocean crossing. Even better news – he may just inspire all of us by showing that we can take what we love doing, no matter what it is, and use it improve the world around us in any way we can think of. A social enterprise mash-up in the making.

health, healthcare, home, movie, news, newspapers, social change, television

My Year of Hopefulness – Mr. Ayers and Mr. Lopez

I’ve been developing a habit of reading and listening to inspirational stories. I need to keep my courage and strength up in these tough times. We all do. On Sunday, I watched 60 Minutes because President Obama was speaking. I planned to shut off the TV and go through some of my weekly reading that had piled up as soon as President Obama’s interview was complete. Instead, I spent the remainder of the hour glued to the TV, getting to know Mr. Ayers and Mr. Lopez


Meet Mr. Lopez, a columnist for the LA Times. A good guy whom you imagine might be your neighbor, a fellow parent at your child’s school, if you’re lucky he’d be your boss or colleague. Now meet Mr. Ayers, a homeless man in LA. He suffers from the disease of paranoid schizophrenia. And he is a brilliantly gifted musician. Cello, violin, and trumpet. Gift enough to be admitted to Julliard. Gifted enough still to keep up with the LA Philharmonic whose members now rehearse with and provide lessons to him when he visits them at the concert hall. 

After his first year at Julliard, Mr. Ayers went home and began showing signs of his illness which was rearing its ugly head inside his wonderfully gifted mind. As a last ditch desperation move, Mr. Ayers followed the advice of psychiatrists and subjected her son to electric shock treatments. It is a barbaric treatment that was at one time, not all that long ago, accepted as a viable tool to manage the disease. Instead, it sent Mr. Ayers into a downward spiral from which he has never returned. 

Mr. Lopez and Mr. Ayers met three years ago. Mr. Ayers was playing his cello in a park as Mr. Lopez roamed the streets trying to come up with a story for his looming deadline. What struck Mr. Lopez in addition to Mr. Ayers’s virtuosity, was that he wasn’t playing in the park for money. He was just playing his cello for himself. Mr. Lopez would learn that Mr. Ayers played to forget, to chase away the frightening effects of his schizophrenia. He needed to, wanted to drown out his deepest, darkest concerns. Thus began a 3 year friendship that continues and flourishes so much that it caught the attention of Universal Pictures and has been turned into a movie, The Soloist, featuring Jamie Foxx and Robert Downey, Jr. The movie will open in theatres on April 24, 2009.  

My father was a clinical psychologist so I know a bit about diseases like paranoid schizophrenia. I can tell you that it is a heartbreaking disease to see and experience up close, and it is even harder to see the strain the disease places on families and loved ones of the person who has the disease. To hear the story of Mr. Ayers, to hear his incredible musical gifts mixed with his equally incredible demons, we have to believe that in all people, regardless of circumstances, there is good and not-so-good. 

It was a reminder to me that too often we cast aside the mentally ill in this country as if they have nothing to offer society. They are hidden away, forgotten, ignored. Their basic needs like healthcare and shelter too often go unfulfilled. In our society, they have very few vehicles to raise their voice, to come together, to stand up, and to be counted. Let’s hope that The Soloist is not just another feel good story at the box office but that it actually raises awareness that inspires action. On the movie’s website, there are links to help you get involved in the efforts to end homelessness and help those with mental illnesses.   

To read the 5-part series written by Mr. Lopez about Mr. Ayers, click here.

The above photo depicts Mr. Nathaniel Ayers playing the violin. I found the image at: https://christaavampato.com/wp-content/uploads/2009/03/1865563850_9f4c68c464.jpg?w=300
health, healthcare, social media

My Year of Hopefulness – YouTube for Medicine

My mom told me yesterday that one of her knees has gotten so bad that it looks like she will need a total knee replacement. My mom, by nature, is an incredibly upbeat, positive person. The tough part about her is that she tends to grossly underplay any serious news when it comes to her health. I know that this type of surgery is very invasive and serious so when my mom said she’d likely be back at work two weeks after the surgery I almost fell off my couch.

I immediately called my friend, Ken, who works in physical therapy and is one of the dearest people in my life. he has an incredible bedside manner and is a wonderfully caring therapist who is also honest and straight-forward. “No way, now how is she going back to work after two weeks.” We talked some more about the procedure so I would know what to ask the surgeon when I go with my mother to get a second opinion (and we are getting a second opinion, and a third and a fourth is necessary.) “Oh, and one more thing,” Ken said. “Go to YouTube and type in ‘total knee replacement’ so you understand the procedure. Just don’t tell your mom to do that or she’ll never get it done.”

I followed Ken’s advice, of course, and went to YouTube. 729 hits for “total knee replacement”. I was able to understand the process in both long and short formats, understand the immediate post-op and recovery process, and have a list of questions to ask the surgeon when my mom and I met him or her. Ten of thousands of people are viewing the health videos I checked.

YouTube is a treasure trove of medical information. “Cancer” yeilded 123,000 videos on YouTube. “Heart attack” – 39,300. “Diabetes” – 20,700. “First aid” – 36,900. I am by no means suggesting that we begin to use YouTube to self-diagnose or diagnose others. When it comes to collecting information about our health, I ere on the side of wanting more than my fair share of information and data. Social media sources like YouTube are changing the way we view our bodies, our health, and our healthcare system. This is serious cause for hope and thanks.

The above image and video on total knee replacement surgery can be found at: http://www.youtube.com/watch?v=4Aoo_nFpDd4

business, career, Fast Company, health, media, New York Times, politics, women

My Year of Hopefulness – Women on the Rise

I read an amazing article this week in the New York Times about women who are finding the athlete side of their personality later in life. As recently as 30 years ago, women were discouraged from competitive sports, particularly from running. As a runner, that fact still stuns me and makes me grateful for the times when I was raised. For my mom and for millions of women like her, the road was not easy along any path, particularly when it comes to being fit and active. That is a recent phenomenon. One I am very grateful for.

The article left me thinking about what other areas of life have been off-limits to women that are now seeing the tide turn. Certainly in women being entrepreneurs and controlling their own careers. Great strides have been made in media – there are so many to name in that field. From Oprah to Barbara Walters, Katie Couric, Christiane Amanpour, Arianna Huffington. And the list goes on. I am always proud of how many female business journalists have been featured as our media chronicles this latest economic downturn. I often think that women are running the reporting from Wall Street: Maria Bartiromo and Erin Burnett are terrific examples.

I am now reading a book entitled Another Day in the Frontal Lobe. It’s the story of Katrina Firlik, a young neurosurgeon. She was the first woman accepted into the neurosurgery residency at the University of Pittsburgh Medical Center. Certainly in healthcare, and particularly in fields like neurosurgery, women like Dr. Firlik are paving the way.

Technology is seeing its fair share of women on the scene. Ning co-founder Gina Bianchini, Yahoo! CEO Carol Bartz, and Charlene Li who authored the book Groundswell while at Forrester Research, immediately spring to mind. Having made great strides in this industry, women have a long road ahead. Fast Company recently ran a feature on some of the most influential women in tech. It’s a good read and I highly recommend it.

In politics we are lucky to have so many women taking the helm. I am very proud that Secretary of State Clinton heeded the calls during this difficult time that America’s reputation is facing around the world. I cannot imagine anyone better suited for the job. Ruth Bader Ginsburg, Shirley Franklin, and Janet Napolitano are other shining examples of the many that serve in all levels of government.

I consider fields like energy, transportation, and engineering and wonder how women will make their marks in those areas in the coming years. It will be exciting to watch and to take part in that development. With so many incredible female role models to learn from, women are poised for take-off.

The photo above was taken by Filip Kwiatkowski for The New York Times.

entrepreneurship, fashion, health, New York, wellness

NY Business Strategies Examiner.com: an interview with Cathy Gins, Founder of Aromawear

I had the pleasure of talking to Cathy Gins, Founder of Aromawear, this week. Cathy designs fully customizable aromatic jewelry that combines her 17 years of design experience at Avon with her work as a practitioner of Therapeutic Touch, Reconnection Healing, and Clinical Aromatherapy. Inside each piece is space for a small felt wick that is designed to be scented with a therapeutic oil. The wicks pop in and out of the jewelry very easily, without causing any damage to the jewelry, so that you can adjust the scent you want around you depending on your need at the time. Stressed? You might want to try some lavender. Need to feel motivated? peppermint, lemon, or a citrus scent will help. Feeling under the weather? Try eucalyptus cold relief or a blend called Thieves, which has antibacterial properties and was used by medical workers during the Plague to provide relief. And all of these wicks can be packed into a convenient, pocket-sized traveling case.

For the full article, please visit http://www.examiner.com/x-2901-NY-Business-Strategies-Examiner~y2009m2d19-Aromawear-wellness-you-take-with-you

charity, Examiner, gaming, health, healthcare, nonprofit, philanthropy, technology, video games

Hopelab on Examiner.com

I just kicked off my week-long series on Examiner.com of the use of video games in non-traditional gaming markets. First up: Hopelab, a nonprofit that uses video games to help young help fight chronic illnesses and live healthier lives. Check it out at: http://www.examiner.com/x-2901-NY-Business-Strategies-Examiner~y2009m2d1-Hopelab-video-game-takes-on-cancer

business, entrepreneurship, health

Chance meetings you keep

Today I was feeling pretty badly. Sore throat, achy muscles, possibly a fever. But I had to go to work. I know I’m supposed to stay home when I’m sick. I couldn’t today – too much to do, no time to do it. Bad practice – yes. Avoidable – yes, if I had known I wouldn’t feel well and had brought my computer home. I didn’t. So I went in. 


And my sickness got worse throughout the day. My frustration and irritation was mounting.I hate being sick; I hate feeling sow and unproductive. Frankly, I just wanted to go home and crawl into bed. 

I had a meeting after work with an entrepreneur whom I greatly admire – Melanie Notkin who started savvyauntie.com. (If you haven’t checked out the site or signed up for the newsletter, I strongly encourage you to do so!) She wrote a post on her blog recently asking for interns. She wanted help, exactly the help that aligns with my experience and interests, to build her brand. I love social media; she loves social media and she needs someone to work on that part of her business. I almost cancelled our meeting, or at least postponed it. I didn’t feel well. I was tired. And frankly, I arrived home with a very bad attitude. How could I go talk to this bright-eyed entrepreneur with this dark cloud hanging over my head? I went any way – it’s rude to cancel last minute. And we were meeting at a Starbucks around the corner from my apartment. So I put on my best actor smile, decided to be in a good mood, and then was in a good mood. 

Thankfully I place a value on respect because I am thrilled that I didn’t cancel! I thought we’d meet for half an hour – we talked, non-stop for 2 and a half hours. By the end of our meeting I was on-board and excited about being an intern. An unpaid intern. Who would have thought? 
   
Turns out I was sick, though I had misdiagnosed the cause. I felt deflated all day today. With savvyauntie, Melanie explained what she needed, I explained what I was interested in, and we found a common ground. And wouldn’t you know it – my sore throat went away, my muscles ached less, and my bad attitude had evaporated. I feel more motivated for every area of my life. And I’m pretty jazzed about my new project. More to come… 

Chicago, exercise, friendship, health, marathon, New York City, Real Simple, running, theatre, wellness

October 14, 2001

Several months ago, I submitted a story to Real Simple Magazine to answer the question, “Tell us about one of the most important days of your life in 1500 words or less.” I’m sure a lot of people wrote about their wedding day, or their kids bring born, a graduation. I wrote about the marathon I ran in in Chicago in 2001, a month after September 11th. I was on the eve of losing my job and was heart-broken that my city had been violated so terribly. I was angry, confused, and scared. For that month after the attack, I felt alone. The Chicago marathon changed some of those feelings for me, and as it turns out it was one of the most poignant moments of my life. Here’s the story:


In the summer of 2001, I was in Toronto on the Broadway tour of The Full Monty. I was the first person hired full-time for the tour and we had grand plans. I had been working so much that I had neglected my workout schedule and decided a big goal would help me to recommit. In the Fall the tour would be traveling to Chicago, and the Chicago marathon would be in the middle of our run.

I was a cross-country runner in high school and always interested in running a marathon. Chicago was a perfect opportunity! I recruited my friend, Mark, the drummer on the show, to run with me. He wanted to get in better shape, too, and agreed to go the distance with me. I purchased a training book that laid out an ambitious but doable schedule for us and we were off.

Long runs, short runs, speed workouts, stretching, improved eating habits. Mark was with me every step of the way, everyday, with his cheery attitude and lovely British accent. There was no way I could have gotten through the experience without him. Training in Toronto was a magical time in my life because I felt like I was regaining my sense of self. It was easy to get lost in my work, and I needed to rediscover who I was and where my life was going. This training helped me do that.

Before Chicago, we had a brief hiatus and I returned to New York City for a few weeks. I did a few touristy things I had always wanted to do. On September 7th, I ventured to the World Trade Center and had a look around. I had never been to that neighborhood before. There wasn’t anything particularly remarkable about that afternoon. I remember that it was a long, beautiful walk along the Battery. I do remember looking out over the water and feeling lucky to be there. I looked forward to coming back to New York when the tour was over.

I left for Chicago on September 9th. Mark and I were getting into top physical shape, and were glad to be reunited to finish our training in Chicago. And then September 11th happened. My brother left me a message that morning, panicked that I was in New York. I figured he heard about some kind of crime in the city on the news. I dismissed his concern as nothing more than his overprotective nature and sense of exaggeration. I tried to call him back and his cell number was busy. Odd. I tried to call my mom. Busy. Was the entire AT&T network down?

I walked to work that morning, winding my way through the theatre district in Chicago. A beautiful day. I had never been to Chicago before and was entranced by it. This was going to be a great run for us. I stopped in at the Corner Bakery to get a coffee and a danish. Could life be any better? Then I got to work.

My boss was frantically searching on the internet, listening to NPR. The office phone was ringing off the hook.

“What’s going on?” I asked.

“Two planes flew into the World Trade Center.”

“By accident?” I asked.

“I don’t think so,” he replied.

And then everything was different.

My beautiful city, the very area I had been only days before, was in chaos. We worked all day, talking with our producers, easing the fears of our company members, and trying to calm our own fears. Finally, they closed the Loop in Chicago, and we were forced to leave the theatre.

I went to visit my friends and finally saw so many of the pictures that people had been watching all day. It was even more devastating than I had imagined. I went to bed that night thinking that our nation would never be the same, that all these years I had taken our safety for granted. I was right on both counts.

Within a month, our show announced its closing and we lost our jobs. The bottom fell out of the theatre industry. But before closing down, Mark and I ran the marathon. On Saturday, October 14th, we arrived at the starting line at 6am. We dropped off our valuables at check-in and got our numbers. We had trained hard in the final weeks – running was the only time of day I felt useful. Still, I was worried that we weren’t ready. Maybe we wouldn’t be able to finish. Maybe there was just no point to anything anymore.

We lined up, the gun went off, and slowly we wound our way through the neighborhoods of Chicago. The morning was sunny, the temperature perfect. A few miles in, I found that for the first time in a month, I noticed the sunshine, and felt warm. Mark and I stopped at every water and food station to keep our energy up.

What struck me the most about that race was the generosity of the crowd lining the entire route. I hadn’t expected that. They had orange slices and popcorn, cowbells and signs to cheer us on. That crowd made me believe in the goodness of the world, in our ability to reaffirm life. 

17 miles in, my knees began to ache terribly. “Come on, Love. We can do this,” Mark said. With that vote of confidence, he gave me a Tylenol. My knee pain was gone in minutes since my blood had been pumping strong for over two hours. Mentally, I was still feeling rattled. And then Mark did something that will make me love him forever. Mark asked me, “How did you start running?”

No one had ever asked me that before. Truth was, I started running to run away from my life. My dad was sick for most of my childhood and during my teen years, the situation in my home grew dire. I suffered from insomnia, and found that long-distance running would tire me out enough to sleep peacefully for a few hours. When I was racing, I knew my family was proud of me. I also thought if I could get good enough, I might be able to go to college on a partial scholarship. There was no money in my family to send me to college.

In my junior year of high school, I sustained a terrible injury that knocked me out for the season. I was devastated. I felt broken. I had a hard time walking for a number of months and began to run on my injured foot too soon, re-injuring it. A few months later, my father passed away after a long illness. While there was more peace in the house after his passing, it was an uncomfortable silence. That spring, I ran to forget, to hide. I didn’t care if I won any event. I just wanted to exhaust myself.

After that injury, I had the goal of someday running a marathon to pay tribute to my family for having lived through a difficult time. So this was it. This marathon was for my family. And if I could make it 26.2 miles, I’d believe that finally my body and my spirit were no longer broken.

Mark was quiet the whole time. I thought he might be bored with my droning. Turns out he was just a very good listener. “I’m sure that today your dad’s proud of you,” Mark said. And I believed him.

At the 26-mile mark, the finish line was in sight. There were banners flying high, and masses of people cheering. I felt like I was flying. At that point, Mark and I had to split because they timed men and women separately. We’d reunite at the end of the race. I smiled so wide crossing that finish line that I thought my face might crack. I lost all sense of exhaustion and burden. Mark and I made it – 26.2 miles in less than four and a half hours, step by step, together.

That day, I learned more about the world than any other day before or since. I developed a special fondness for Chicago – I felt that the crowd who came out that day breathed new life into me at a time when I felt very hollow and alone. That crowd helped me to refocus on the generosity and commitment of people to a community. Despite a dark set of circumstances facing all of us, we could rediscover happiness and enlightenment and move forward. I learned that true friendship carries us in the most trying times. I’m forever indebted to Mark for his positive attitude and belief in me. Almost 10 years after my dad’s passing, I lived up to the promise to honor my family. I raced toward sunshine, and found it. And I have been alight ever since. “

The photo above can be found at: http://riseupomenofgod.files.wordpress.com/2007/05/running-man.jpg

charity, child, childhood, children, health, healthcare, philanthropy

March of Dimes Petition for Preemies

My friends over at the March of Dimes have put together a campaign to address the health and well-being of the tiniest members of our communities. They put up a beautiful post on their website and I want to share it with all of you:


Petition for Preemies

My best friend just gave birth to her first child – a baby girl named Milana.  I can’t tell you how excited I am to share in my best friend’s happiness!  But to be honest, I’m also a little nervous. That’s because Milana was born prematurely, and babies who are born preterm face special health risks.

Milana isn’t alone.  In the U.S., 1 in 8 babies are born prematurely. In fact, more newborns die from premature birth than any other cause. That’s why I signed the March of Dimes Petition for Preemies.

The Petition for Preemies will help give all babies a healthy start by putting public officials – and all Americans – on notice that it’s time to focus on the growing problem of premature birth.

Show your support by joining thousands of other moms in signing thePetition for Preemies. If you’re a blogger, write a post about this issue or put our purple widget or button on your blog. Get information about how you can help more babies come into the world healthy.

Thankfully, Milana is home now and doing just fine.  Let’s help more moms have healthy babies!

Want to lend a hand in the effort? Sign the petition:http://www.marchofdimes.com/padpetition/index.aspx?a=1&z=1&c=1&l=en